{"id":843,"date":"2023-06-23T12:00:27","date_gmt":"2023-06-23T16:00:27","guid":{"rendered":"https:\/\/nucleodisca.cl\/?p=843"},"modified":"2025-09-08T15:48:05","modified_gmt":"2025-09-08T19:48:05","slug":"informed-consent-and-support-for-decision-making-a-critical-review-of-legal-reforms-in-latin-america","status":"publish","type":"post","link":"https:\/\/nucleodisca.cl\/en\/informed-consent-and-support-for-decision-making-a-critical-review-of-legal-reforms-in-latin-america\/","title":{"rendered":"Informed Consent and Support for Decision-Making: A Critical Review of Legal Reforms in Latin America"},"content":{"rendered":"<p>Persons with intellectual and cognitive disabilities (hereinafter PICDs) face significant barriers when accessing health treatment and satisfying their right to enjoy the highest possible standard of health . This is worrying to the extent that these persons also experience a greater need for such treatments and have higher mortality and morbidity rates than the rest of the population. These difficulties impact access to health promotion policies and curative health treatments, and include, for example, inadequate time allocation by health care workers, discrimination, lack of reasonable adjustments or poor accessibility to premises and health systems. These barriers also affect the ability to select health care treatment and to control how it is provided. The latter affects PICDs in a particularly acute way due to a diversity of factors, which include, on the one hand, barriers associated with their impairments, such as those that affect communication, perception or memory, and, on the other hand, barriers socially constructed in their environment, which include, among others, paternalistic attitudes, lack of support from their caregivers and lack of expertise and training of health care workers, which often leads to discrimination and mistreatment.<\/p>\n<p>To the extent that historically, PICDs have been subjected to regimes of legal incapacity where they are appointed a representative to make decisions for them on property and personal matters \u2013 as is the case with interdiction and guardianship in Latin America \u2013, health legislation has relied on these institutions to determine who should make decisions regarding their health treatment. with the emergence of the debate on the need to provide informed consent (hereinafter IC) in the second half of the 20Thcentury, which reconstructs the doctor-patient relationship in terms of individual autonomy, the question has arisen about how PICDs can authorise health treatment. The default legal response, to the extent that IC appears as a personal legal act, is that if the person is under a regime of legal incapacity, the person who must provide IC as a substitute is their legal representative.<\/p>\n<p>&nbsp;<\/p>\n<p>Notes:<\/p>\n<ul>\n<li data-start=\"1014\" data-end=\"1122\">This publication is a chapter from the book &#8220;Legal Capacity, Disability and Human Rights&#8221;<\/li>\n<li data-start=\"1014\" data-end=\"1122\">This book is not free to access.<\/li>\n<li data-start=\"1014\" data-end=\"1122\">This book was published in English.<\/li>\n<\/ul>\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>Persons with intellectual and cognitive disabilities (hereinafter PICDs) face significant barriers when accessing health treatment and satisfying their right to enjoy the highest possible standard of health . This is worrying to the extent that these persons also experience a greater need for such treatments and have higher mortality and morbidity rates than the rest [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[16],"tags":[33],"class_list":["post-843","post","type-post","status-publish","format-standard","hentry","category-publications","tag-sexualidad-y-reproduccion"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Informed Consent and Support for Decision-Making: A Critical Review of Legal Reforms in Latin America - N\u00facleo Disca<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/nucleodisca.cl\/informed-consent-and-support-for-decision-making-a-critical-review-of-legal-reforms-in-latin-america\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"[:es]Informed Consent and Support for Decision-Making: A Critical Review of Legal Reforms in Latin America [Consentimiento Informado y Apoyo para la Toma de Decisiones: Una Revisi\u00f3n Cr\u00edtica de las Reformas Legales en Am\u00e9rica Latina][:en]Informed Consent and Support for Decision-Making: A Critical Review of Legal Reforms in Latin America[:] - N\u00facleo Disca\" \/>\n<meta property=\"og:description\" content=\"Persons with intellectual and cognitive disabilities (hereinafter PICDs) face significant barriers when accessing health treatment and satisfying their right to enjoy the highest possible standard of health . 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