Comments Off on Accessing Sexual and Reproductive Health Services in Chile: Women with Disabilities and Their Experience with Gynaecological and Obstetric Violence
Points of interest:
The study doesn’t just look at statistics; it uses a feminist phenomenological approach.
This means it prioritizes the lived experience and the “first-person” perspective of the women, acknowledging that their bodies are not just medical subjects but sites where gender and disability intersect.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based solely on the publication. Therefore, it cannot be used for citations or references.
Comments Off on La lectura fácil como herramienta para el acceso a la justicia de las personas con discapacidad intelectual y del desarrollo en América Latina [Easy reading as a tool for access to justice for people with intellectual and development disabilities in Latin America]
Points of interest:
Easy-to-Read as a Solution: This research proposes adapting texts into Easy-to-Read format as an urgent practice to reduce the inequality gap and ensure that this group can make their own decisions and exercise their rights on equal terms.
The author emphasizes that support mechanisms are tangible ways to guarantee effective participation. This includes eliminating legal guardianship and replacing it with supported decision-making models.
Significant obstacles are identified, such as physical, communicative, and attitudinal barriers within the judicial system.
Notes:
The following summary was prepared by the Millennium Nucleus for People with Disabilities (DISC) and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on Sin detección, sin denuncia y sin proceso: la vulneración de derechos de niñas y niños con discapacidad intelectual en Chile [Undetected, unreported and unprosecuted: the violation of the rights of children with intellectual disabilities in Chile]
Summary:
Speaking of Children and Adolescents (CNA) instead of the generic term “child” to refer to the diverse individuals within this group, or beginning to speak of childhoods in the plural, is a step forward in recognizing the diversity of voices and actors. When we say that all children are subjects of rights and not objects of protection, this implies active participation in forums where issues affecting them are addressed. This principle applies to CNA with typical development, but also to CNA with disabilities, with children with intellectual disabilities (ID) being the most frequently questioned when it comes to “presuming competence.” CNA with ID are more vulnerable than their neurotypical peers to rights violations and, especially, to sexual abuse. In this chapter, we provide a review of rights, focusing on CNA with disabilities, examining the case of CNA with ID as one that requires special attention. We present a summary of the barriers to accessing justice and propose a model of conscious and respectful care that improves access to justice for this group. Future research, with numerous ethical safeguards, should examine the situation of children and adolescents with disabilities from an empirical perspective.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on Participation and (Human) Occupation
Summary:
This book gives occupational therapy students, science students, and practitioners a comprehensive overview of key concepts about human occupation, while also presenting a wide range of perspectives for observing and understanding the work of occupational therapy and occupational science.
The book is composed of 40 chapters and is divided into 5 sections:
Section 1: Overview of Human Occupation. This section introduces the field of occupational therapy and its conceptual landscape, including different models of therapeutic practice and practical reasoning.
Section 2: Contemporary Perspectives on Human Occupation. Includes critical perspectives on disability and race, and the philosophical foundations of occupational science.
Section 3: Main Concepts. Explanations of the conceptual language of human occupation, through discussions linked to the individual, the social, the psychological, the physical, performance, and the environment.
Section 4: Human Occupation throughout the lifespan and its course. It encompasses the development of human occupation from childhood to old age.
Section 5: Domains and Types of Human Occupation. From sleep to play, from sexuality to social participation, and from education to work.
With an exceptionally international scope, each chapter of this edited book includes learning objectives, key terms, summary notes, questions, and a list of additional online resources for readers. This is a comprehensive resource for anyone beginning a course in occupational therapy, clinicians seeking an accessible reference to support their practice, or occupational scientists needing access to contemporary concepts related to occupation.
Notes:
The following summary was translated by the Millennium Nucleus DISCA and is based exclusively on the summary of the book “Human Occupation: Contemporary Concepts and Lifespan Perspectives.” Therefore, it cannot be used for citations or references. The text “Participation and (Human) Occupation” corresponds to Chapter 16 of the book.
Comments Off on Repertorios en resistencia de la discapacidad en el estallido social chileno [Disability’s repertoires in resistance in the Chilean social outbreak]
Points of interest:
This article aims to reconstruct and politically interrogate the space of dispute where the archive of the “disabled” body and its current repertoires of resistance reside.
The central elements of this article are the disability archives in Chile and the repertoires embodied in resistance to said archive within the framework of the so-called Chilean social “outbreak”.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on Motherhood, disability and rurality: Descolonizing practices and knowledge via the Las Quiscas case in Chile
Points of interest:
Women with disabilities face a number of obstacles in the exercise of their motherhood.
The objective of this article was to investigate the life trajectory of a woman with a visual disability regarding her motherhood process in a rural area of the south-central region of Chile.
Various techniques were used in this case study, such as in-depth interviews and photographic records.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
With the presence of attendees from different parts of the country, Núcleo DISCA held the Seminar “Towards an equitable health system for people with disabilities”.
We counted with the presentations of 10 researchers in disability, including the presence of international specialists such as Dikaios Sakellariou, Pia Venturiello, Pamela Molina and Beatriz Miranda.
With the collaboration of the Fondecyt DisPar project (Reproductive processes and parental experiences of people with disabilities in Chile: discrimination, adaptation and resistance) and the Universidad Diego Portales, last December 14 – in the Auditorium of the Faculty of Social Sciences and History UDP – was held the seminar “Towards an equitable health system for people with disabilities” coordinated by the DISCA Core Team and with the special support of the Principal Researcher of the organization, Elena Rotarou.
With three panels during the day and the presence of people who had not participated in previous activities, we celebrated diversity and research in different segments. First, we opened with the panel that gave the Seminar its name, with the participation of Dikaios Sakellariou from Cardiff University, United Kingdom; Pía Venturiello, from the University of Buenos Aires and Pamela Molina, Executive Director of the World Federation of the Deaf.
Then, the panel “Reform of mental health legislation in Chile” was held with the participation of the lawyer and alternate director of DISCA, Pablo Marshall, Marcelo Sanhueza from the Ministry of Health and Alejandro Guajardo, Dean of the Faculty of Medical Sciences of the University of Santiago de Chile.
At the end of the activity we celebrated the panel called “Decisions, experiences and support in the reproductive stage of people with disabilities” with the presence of Jimena Luna, Project Coordinator at CEDETi UC and CIAPAT Chile, Andrea Yupanqui from the University of Magallanes, Beatriz Miranda, Coordinator of the Program of critical studies of “disability” and Melissa Hichins from Reprodis.
In this sense, we highlight “the quality of the presentations (which) was of a very high level and we were able to learn about national experiences and from different parts of the world regarding access to health care for people with disabilities (…) which allowed us to learn about other realities, allowing us to ask new questions about the barriers and support that exist in Chile. In addition, we are proud that we were able to have people with disabilities on all the panels. This allows us to continue advancing in our seal: that all these spaces are from people with disabilities and with people with disabilities”, says the team of Núcleo DISCA.
With the realization of this event, we see ourselves closer to the deaf community by having Carmen Figueroa, expert by experience of Núcleo DISCA who officiated as master of ceremonies. In addition, “Pamela Molina, from the World Federation of the Deaf, presented the work they have been doing in different communities; we have interpreters in Chilean sign language and with the attendance of deaf people in the activity. This makes us very happy and challenges us to continue advancing to reach all people with disabilities.
Comments Off on BENDI: Improving Cognitive Assessments in Toddlers and Children with Down Syndrome Using Stealth Assessment
Points of interest:
The BENDI study (Battery for Neuropsychological Assessment in Intellectual Disability) presents a new digital tool designed to overcome the limitations of traditional tests in the assessment of infants with Down Syndrome.
He focused on developing a battery mediated by digital technology that allows exploring key cognitive domains through the concept of stealth assessment, in which children with Down syndrome can perceive the assessment as a game.
Sixty-eight children with Down syndrome were evaluated from 20 months to 12 years of age.
Four tasks were tested, which were provided as a game-like experience.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on COVID-19’s impact on worker stress in human service organizations: The mediating role of inclusion
Points of interest:
This article highlights the importance of relationships, decision-making processes, and access to information in reducing stress in post-pandemic scenarios for organizations that traditionally manage crises.
Due to COVID-19, human service organizations faced extraordinary challenges.
The objective of this article is to analyze the impact of COVID-19 on work stress and the role of inclusion among workers in social service organizations in Chile during the pandemic.
The sample consisted of 173 workers from civil society organizations who were contacted during the pandemic.
The study’s hypothesis confirmed that people most affected by the pandemic experience higher levels of work-related stress.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
