Comments Off on Repertorios en resistencia de la discapacidad en el estallido social chileno [Disability’s repertoires in resistance in the Chilean social outbreak]
Points of interest:
This article aims to reconstruct and politically interrogate the space of dispute where the archive of the “disabled” body and its current repertoires of resistance reside.
The central elements of this article are the disability archives in Chile and the repertoires embodied in resistance to said archive within the framework of the so-called Chilean social “outbreak”.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on Motherhood, disability and rurality: Descolonizing practices and knowledge via the Las Quiscas case in Chile
Points of interest:
Women with disabilities face a number of obstacles in the exercise of their motherhood.
The objective of this article was to investigate the life trajectory of a woman with a visual disability regarding her motherhood process in a rural area of the south-central region of Chile.
Various techniques were used in this case study, such as in-depth interviews and photographic records.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
With the presence of attendees from different parts of the country, Núcleo DISCA held the Seminar “Towards an equitable health system for people with disabilities”.
We counted with the presentations of 10 researchers in disability, including the presence of international specialists such as Dikaios Sakellariou, Pia Venturiello, Pamela Molina and Beatriz Miranda.
With the collaboration of the Fondecyt DisPar project (Reproductive processes and parental experiences of people with disabilities in Chile: discrimination, adaptation and resistance) and the Universidad Diego Portales, last December 14 – in the Auditorium of the Faculty of Social Sciences and History UDP – was held the seminar “Towards an equitable health system for people with disabilities” coordinated by the DISCA Core Team and with the special support of the Principal Researcher of the organization, Elena Rotarou.
With three panels during the day and the presence of people who had not participated in previous activities, we celebrated diversity and research in different segments. First, we opened with the panel that gave the Seminar its name, with the participation of Dikaios Sakellariou from Cardiff University, United Kingdom; Pía Venturiello, from the University of Buenos Aires and Pamela Molina, Executive Director of the World Federation of the Deaf.
Then, the panel “Reform of mental health legislation in Chile” was held with the participation of the lawyer and alternate director of DISCA, Pablo Marshall, Marcelo Sanhueza from the Ministry of Health and Alejandro Guajardo, Dean of the Faculty of Medical Sciences of the University of Santiago de Chile.
At the end of the activity we celebrated the panel called “Decisions, experiences and support in the reproductive stage of people with disabilities” with the presence of Jimena Luna, Project Coordinator at CEDETi UC and CIAPAT Chile, Andrea Yupanqui from the University of Magallanes, Beatriz Miranda, Coordinator of the Program of critical studies of “disability” and Melissa Hichins from Reprodis.
In this sense, we highlight “the quality of the presentations (which) was of a very high level and we were able to learn about national experiences and from different parts of the world regarding access to health care for people with disabilities (…) which allowed us to learn about other realities, allowing us to ask new questions about the barriers and support that exist in Chile. In addition, we are proud that we were able to have people with disabilities on all the panels. This allows us to continue advancing in our seal: that all these spaces are from people with disabilities and with people with disabilities”, says the team of Núcleo DISCA.
With the realization of this event, we see ourselves closer to the deaf community by having Carmen Figueroa, expert by experience of Núcleo DISCA who officiated as master of ceremonies. In addition, “Pamela Molina, from the World Federation of the Deaf, presented the work they have been doing in different communities; we have interpreters in Chilean sign language and with the attendance of deaf people in the activity. This makes us very happy and challenges us to continue advancing to reach all people with disabilities.
Comments Off on BENDI: Improving Cognitive Assessments in Toddlers and Children with Down Syndrome Using Stealth Assessment
Points of interest:
The BENDI study (Battery for Neuropsychological Assessment in Intellectual Disability) presents a new digital tool designed to overcome the limitations of traditional tests in the assessment of infants with Down Syndrome.
He focused on developing a battery mediated by digital technology that allows exploring key cognitive domains through the concept of stealth assessment, in which children with Down syndrome can perceive the assessment as a game.
Sixty-eight children with Down syndrome were evaluated from 20 months to 12 years of age.
Four tasks were tested, which were provided as a game-like experience.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on COVID-19’s impact on worker stress in human service organizations: The mediating role of inclusion
Points of interest:
This article highlights the importance of relationships, decision-making processes, and access to information in reducing stress in post-pandemic scenarios for organizations that traditionally manage crises.
Due to COVID-19, human service organizations faced extraordinary challenges.
The objective of this article is to analyze the impact of COVID-19 on work stress and the role of inclusion among workers in social service organizations in Chile during the pandemic.
The sample consisted of 173 workers from civil society organizations who were contacted during the pandemic.
The study’s hypothesis confirmed that people most affected by the pandemic experience higher levels of work-related stress.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
On November 23rd, the newspaper La Tercera published the article: “Unpublished study reveals that half of the people with disabilities in Chile have children”, based on a study prepared by Núcleo Milenio DISCA, from the latest version of the National Survey on Disability and Dependency (ENDIDE). The study revealed that 47.8% of people with disabilities in Chile are mothers or fathers and live with their children. This figure is similar to the non-disabled population with children.
“Until today we did not know how many people with disabilities are mothers and fathers in Chile,” explained the director of DISCA and author of the study, Florencia Herrera, who added that “the official data on parenthood does not ask about disability and the official data on disability does not ask about the presence of children. This is a transcendental data to guide public policies regarding family and childhood”.
To read the full article, you can visit the following link.
Although access to health services is a human right, people with disabilities face several barriers in their efforts to access such services, reporting more unmet health needs, worse experience with health care services and personnel, and poorer health outcomes. Timely, accessible, affordable and good quality health services are key to the health and well-being of all people. Aiming to create an equitable health system will not only bring benefits for people with disabilities, but will also have a positive impact on the economy and society.
We need more data and more research on which to base the development of public policies, strategies and programs aimed at transforming the health system. For this reason, it is important to engage in a fruitful dialogue between the academic community, decision makers and people with disabilities and their organizations, in order to identify barriers to access and inequities in health care and move towards an inclusive health system.
For this reason, the Millennium Nucleus DISCA (Disability and Citizenship Studies), together with Fondecyt DisPar (Reproductive processes and parental experiences of people with disabilities in Chile: discrimination, adaptation and resistance), and the Universidad Diego Portales, are organizing the Seminar “Towards an equitable health system”.
Date and time: December 14, 2023 at 09:00 a.m.
Place: Auditorium of the Faculty of Social Sciences and History, Universidad Diego Portales. Ejército 333, Santiago, Chile. Floor -1 (there is an elevator)
Registration: For attendance, prior registration is required at this link.
Program
09:00 to 09:30 Welcome
09:30 to 11:00 Panel 1: Towards an equitable health system for people with disabilities.
Presenter:
Dikaios Sakellariou, Cardiff University, UK.
Pía Venturiello, University of Buenos Aires, Argentina
Pamela Molina, Executive Director, World Federation of the Deaf, Argentina
11:00 to 11:30 Coffee break
11:30 to 12:30 Panel 2: Reform of mental health legislation in Chile.
Speakers:
Pablo Marshall, lawyer and alternate director of Núcleo Milenio Disca.
Marcelo Sanhueza, Mental Health Advisory Council of the Ministry of Health.
Alejandro Guajardo, Dean of the Faculty of Medicine, USACH
12:30 to 13:30 Panel 3: Decisions, experiences and support in the reproductive stage of people with disabilities.
Speakers:
Jimena Luna, CEDETi UC, CIAPAT Chile, Fundación Vida Independiente Chile.
Comments Off on Care cooperatives in Uruguay, Argentina and Chile; a look at their hinderers and opportunities to achieve development
Points of interest:
The article presents a study on the factors that strengthen care cooperatives in Uruguay, Argentina, and Chile.
The aim of this article is to explore the experiences and perceptions of people associated with the world of care cooperatives.
Cooperatives encounter barriers related to gender equality, labor market dynamics, and welfare conditions that prevent them from following the established guidelines.
Sixteen interviews were conducted.
The findings are based on the challenges faced by care cooperatives, including those associated with gender issues, lack of experience, and the essential need for both public and private support.
This article establishes a dialogue around cooperatives in the Southern Cone of Latin America.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Con amplia asistencia de público e investigadores con y sin discapacidad, el pasado 12 de octubre, se celebró el Seminario “La Representación de la discapacidad en la política y la investigación” en Valdivia.
La jornada contó con la exposición de investigaciones individuales y la realización de dos paneles temáticos, uno enfocado en la representación Disca en ciencia y otro en la política.
Con la exposición de 33 investigadores y amplia asistencia de público, Núcleo Milenio DISCA realizó el Seminario “La Representación de la discapacidad en la política y la investigación” en el Campus Isla Teja de la Universidad Austral de Chile, abriendo un espacio para el diálogo, discusión y sensibilización sobre la discapacidad en el país.
Uno de los temas centrales que se abordaron fue la participación de personas con discapacidad en investigaciones científicas, así como su actividad de investigadores. “Fue un espacio de encuentro para muchos investigadores e investigadoras en discapacidad de Chile y Latinoamérica. Fue muy interesante escuchar los avances en estudios que abordan distintos ámbitos de la discapacidad realizados tanto por investigadores con gran trayectoria, como por estudiantes recién comenzando su carrera académica (…) Realizar un seminario accesible es un desafío y creo que hemos estado a la altura”, señala Florencia Herrera, Directora de Núcleo Milenio DISCA.
Relevar la necesidad de cambiar la narrativa en torno a la discapacidad y comenzar a verla como parte de la diversidad que aporta riqueza a nuestra sociedad, han sido de las principales ideas que se mencionaron durante la jornada. Los expositores también se han detenido en los testimonios sobre las barreras y desafíos que viven las personas con discapacidad en varios ámbitos, especialmente en la política y en la ciencia.Entender dónde están y cómo funcionan estas barreras se torna imprescindible para poder desarrollar políticas que ayuden a superarlas y así las personas con discapacidad puedan participar plenamente en la sociedad.
Urgencia de la cual DISCA hace eco, volviéndose una plataforma de investigación, divulgación y sensibilización que permite sentar las bases para la transformación social. Además “(…) estos seminarios sirven como un recordatorio de que la articulación entre academia, las organizaciones y el activismo de las personas con discapacidad tiene un rol que desempeñar en la construcción de un futuro más inclusivo”apunta el Director Alterno de DISCA, Pablo Marshall.
