Núcleo Disca

Disability and citizenship

Archive

  1. Embodied recognitive practices: Introducing a pride-based triadic framework linking trans depathologization movement to autistic agency

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    Points of interest:

    • The article proposes a conceptual framework to understand how trans and autistic identities are constructed from recognizable embodied practices.
    • Highlights the role of pride and memory, not only in the body, but also in social contexts, as a fundamental part of the processes of affirmation and resistance against pathologization.
    • Recognition is understood as a complex process crossed by social norms and discourses that can affirm identities, as well as regulate and pathologize them.
    • Recognition flows depend on social movements and community action to ensure harmonious flows in favor of affirmation, fighting against the pathologizing currents that exist in the various realms of the social fabric.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in English.

  2. Socio-community care of people with disabilities: Experiences of caregivers living in south-central zone of Chile

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    Points of interest:

    • People share caregiving responsibilities differently. It varies depending on gender, body type, and individual responsibilities.
    • The aim of this article is to analyze the perceptions of caregivers of people with disabilities regarding community-based care. This type of care refers to care provided within the community.
    • The researchers conducted 10 interviews with women who are caregivers for people with disabilities.
    • Community-based care is formed by the families of people with disabilities. These families put in a great deal of effort to create these care communities, which can lead to exhaustion.
    • Family-run care communities are very important. These communities help meet the needs of people with disabilities.
    • The authors point out the urgent need to create more family-friendly and disability-friendly care systems. They propose that the government should provide greater support for the care of people with disabilities.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in English.

  3. “Vivir el paso a paso”: Itinerarios de rehabilitación de la niñez con discapacidad en narrativas de mujeres cuidadoras en la zona poniente de Santiago de Chile [“Living step by step”: Rehabilitation itineraries of children with disabilities in narratives of women caregivers in the western area of Santiago, Chile]

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    Points of interest:

    • The authors discuss the limitations of laws on access to child rehabilitation in Chile.
    • Often, female caregivers bear more responsibility for children’s rehabilitation activities. This leads them to create alternative plans to ensure they can continue these processes.
    • The text uses the term “therapeutic pathways.” This term refers to plans developed by female caregivers to support their children or grandchildren with disabilities. These plans are created when medical and social support is insufficient.
    • Observations and interviews were conducted with 13 female caregivers in charge of children between the ages of 1 and 9.
    • The female caregivers describe the difficulties they face in obtaining a correct diagnosis and treatment for their children and grandchildren, due to problems with healthcare staff and the high cost of treatment. This causes them distress and exhaustion.
    • Some female caregivers receive support from therapists, foundations, and the educational community in the rehabilitation process for their children and grandchildren. In this way, they develop new therapeutic plans.
    • It is proposed to recognize that the work of women caregivers is important in rehabilitation, and to consider that rehabilitation includes both social and health aspects.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  4. La internación psiquiátrica involuntaria en el derecho chileno: aspectos sustantivos [Involuntary psychiatric hospitalization in Chilean law: substantive aspects]

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    Points of interest:

    • The social movement of People with Disabilities questions the practice of involuntary psychiatric hospitalizations.
    • Involuntary psychiatric hospitalizations refer to the hospitalization of a person without their consent. These hospitalizations are made to people with mental health conditions that put them at risk. They can also put others at risk.
    • The article mentions that the discussion of this type of hospitalization has to do with the fact that the freedom of the people who are hospitalized is not respected.
    • The author proposes solutions to make psychiatric hospitalization less restrictive and more focused on the autonomy of the person.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  5. Implementation of Telehealth Among Older People: A Challenge and Opportunity for Latin America and the Caribbean—A Literature Review

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    Points of interest:

    • The COVID-19 pandemic facilitated the development of telemedicine. Telemedicine refers to medical consultations via video call. This aided in the geriatric care of older adults during quarantine.
    • This article reviews texts on telemedicine during the pandemic. It focuses on analyzing the implementation of telemedicine in geriatrics for older adults. This helps to identify the facilitators and barriers to accessing these medical services.
    • The article acknowledges that telemedicine benefits those who have difficulty accessing healthcare facilities. Examples include people living in rural areas and those requiring specialized care. Telemedicine also supports access to healthcare for people with disabilities.
    • The authors recommend improving the telemedicine service to ensure more equitable and higher-quality access to healthcare. To make these improvements, they propose taking into account the experiences of people who have received telemedicine care.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in English.

  6. El derecho a la maternidad: Violencia ginecológica y obstétrica hacia mujeres con discapacidad en Chile [The right to motherhood: Gynecological and obstetric violence against women with disabilities in Chile]

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    Summary:

    “At a crucial historical moment, this book sheds light on the questions arising from the alarming decline in birth rates globally, and especially in Chile. This compilation, in which we find a wide range of researchers presenting their investigations and reflections, demonstrates that what is beginning to be understood globally, and in public opinion, as a problem, has a group of academics, intellectuals, and activists in our country reflecting on and proposing its causes and policies for solutions. This pluralistic argument allows us to understand “motherhood” in Chile, on the one hand, and the decline in birth rates, on the other, as the product of multiple factors that go beyond purely economic explanations. It is, therefore, a book that offers insights that enrich the debate, but above all—and perhaps therein lies its true contribution—that continues to raise questions.”

     

    Notes:

    • This description was written by Sonia Montecino Aguirre and appears on the back cover of the book “Maternities: Current Challenges of Gender, Family, and Fertility,” published by Fondo de Cultura Económica in Chile. The text “The Right to Motherhood: Gynecological and Obstetric Violence Against Women with Disabilities in Chile” corresponds to Chapter 23 of that book.
    • This book is not free. It is available for purchase at Fondo de Cultura Económica bookstores.
    • This book was originally published in Spanish.

  7. Terapia Ocupacional Social Emancipatória: Contribuições para um marco teórico-metodológico fundamentado no materialismo histórico e dialético [Social Emancipatory Occupational Therapy: Contributions to a theoretical-methodological framework based on historical and dialectical non-materialism]

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    Summary:

    This publication offers a theoretical and methodological framework for understanding social occupational therapy from an emancipatory perspective, grounded in historical and dialectical materialism. It posits that human activities should not be understood solely as individual actions, but rather as practices shaped by social inequalities, power relations, and historical conditions. One of its main contributions is demonstrating that professional intervention can be geared not only toward alleviating immediate problems, but also toward strengthening social participation and transforming everyday life. Furthermore, the text provides concrete tools for analyzing activities, proposing actions, promoting radical participation, and intervening within the social fabric. It also highlights the political role of occupational therapy, as it can contribute to challenging oppressions linked to class, racism, patriarchy, and coloniality. Overall, the book provides a useful framework for building critical, collective practices committed to social justice.

     

    Notes:

  8. Healthcare access among people with and without disabilities

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    In this article, published in the journal Public Health, significant gaps in healthcare access between people with and without disabilities are highlighted.

    Main results:

    Compared to people without disabilities, those with disabilities:

    • Are twice as likely to have health problems.
    • Use health consultation more frequently (general practitioner, emergencies, specialists, dental care, tests, etc.).
    • Show lower coverage for the EMPA Adult Preventive Medical Examination (ages 15-64).
    • Show lower coverage for the Pap test (among people with disabilities aged 25-64).
    • More frequently face barriers to accessing healthcare (distance/transportation, waiting times, affordability, etc.).

    This study reinforces the urgent need for public policies that ensure a more accessible and equitable healthcare system for all people.

  9. Comprehensive Gerontological Assessment: An Update on the Concept and Its Evaluation Tools in Latin America and the Caribbean—A Literature Review

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    Points of interest:

    • This article reviews the concept of Comprehensive Geriatric Assessment (CGA), a complete method for evaluating the health of older adults that considers their physical, mental, functional, and social status.
    • The article proposes updating this concept and adapting it to the reality of Latin America and the Caribbean, where the population is aging rapidly and there are still few professionals trained in geriatrics and gerontology.
    • Fifty validated assessment tools from the region were compiled to identify the needs and risks of older people.
    • It highlights the importance of applying these tools in various settings: primary care, hospitals, nursing homes, telemedicine, and community programs.
    • During the pandemic, many assessments were adapted, which opened up new possibilities for using technology in the care of older adults.
    • The article provides recommendations for improving professional training, conducting more research, creating digital applications, and designing public policies that use these assessments to enhance the quality of life of older people.

    Notes:

    • The following summary was prepared by Núcleo Milenio DISCA and is based exclusively on the original publication. Therefore, it should not be used for citations or references.
    • This article was originally published in English.