Comments Off on Embodied recognitive practices: Introducing a pride-based triadic framework linking trans depathologization movement to autistic agency
Points of interest:
The article proposes a conceptual framework to understand how trans and autistic identities are constructed from recognizable embodied practices.
Highlights the role of pride and memory, not only in the body, but also in social contexts, as a fundamental part of the processes of affirmation and resistance against pathologization.
Recognition is understood as a complex process crossed by social norms and discourses that can affirm identities, as well as regulate and pathologize them.
Recognition flows depend on social movements and community action to ensure harmonious flows in favor of affirmation, fighting against the pathologizing currents that exist in the various realms of the social fabric.
Notes:
The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
Comments Off on “How likely are people with disabilities to be present?”: interviews on the ableist logic of Latin American academia
Points of interest:
The study shows how ableism (treating people unfairly because their body or mind is different) affects universities in Latin America.
It includes 51 interviews with researchers and activists from different countries.
Three barriers appear: closed university cultures, unfair workloads, and exclusion of people with intellectual disabilities.
Participants said that unfair ideas and old habits make universities unequal.
The authors suggest more accessible and inclusive ways to do research.
Notes:
The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
Comments Off on An infrastructure of embodied practices: How disabled people become part of public transport in Santiago de Chile
Points of interest:
The article analyzes the experiences and practices of public transport use by people with disabilities.
The article calls for recognition of invisible efforts, and transport planning to adopt perspectives that value and consider these “ways of doing” in their urban design and management practices.
The findings allow to describe transport infrastructures as an assemblage of bodies and materialities, inviting to recognize people with disabilities not only as beneficiaries of transport, but as constituent subjects of it.
The article was based on ethnographic data and multimodal video analysis.
Multiple ways in which the bodily practices of persons with disabilities are part and support the functioning of public transport in Santiago are examined.
Notes:
The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
Comments Off on Tejer la memoria, bordar la diferencia: artivismo textil y agencia política de personas con discapacidad [Weaving the memory, stitching the difference: textile activism and political agency of people with disabilities]
Points of interest:
The joint work with the Colectivo Nacional por la Discapacidad and the Embroiderers de la Villa Frei shows how community practices can challenge hegemonic narratives and open spaces of epistemic justice for historically marginalized groups.
Collective embroidery as an artivist and political practice.
The article highlights embroidery not only as an artistic expression, but as a tool of denunciation, resistance and political action. The textile works as a means to make injustices visible and question official narratives about memory and citizenship.
From an ethnographic and collaborative perspective, embroidery appears as a situated epistemological practice that integrates bodily experience, affectivity and collective narrative.
The article denounces how capacitative logics persist in cultural and public spaces, highlighting the exclusion of people with disabilities in Chile.
One of the central themes is how collective embroidery allows to work out pain and mourning in a community way.
Notes:
The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
Comments Off on Decolonial feminist analysis of personal assistance policies in EU member states
Points of interest:
Personal assistance (PA) is defined as a human right for the independent life of persons with disabilities.
The traditional eurocentric frameworks of the PA are criticized, in which it is pointed out that the current development model is colonial, capacitative, heteropatriarcal and eurocentric.
The decolonial feminist Latin American contribution is used as a theoretical and political framework to confront and rethink the dominant models of care.
Although the PA is formally established in most EU member states, the article reveals that its implementation is very uneven. The analysis exposes how current AP agreements still reproduce knowledge hierarchies, directly affecting who defines needs, who decides, and what knowledges are considered legitimate.
The article makes visible the tensions and limits of Eurocentric policies, the decolonial feminist approach not only criticizes but also proposes community-based alternatives to PA that are relevant and applicable for both Latin America and Europe.
Notes:
The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
Comments Off on Socio-community care of people with disabilities: Experiences of caregivers living in south-central zone of Chile
Points of interest:
People share caregiving responsibilities differently. It varies depending on gender, body type, and individual responsibilities.
The aim of this article is to analyze the perceptions of caregivers of people with disabilities regarding community-based care. This type of care refers to care provided within the community.
The researchers conducted 10 interviews with women who are caregivers for people with disabilities.
Community-based care is formed by the families of people with disabilities. These families put in a great deal of effort to create these care communities, which can lead to exhaustion.
Family-run care communities are very important. These communities help meet the needs of people with disabilities.
The authors point out the urgent need to create more family-friendly and disability-friendly care systems. They propose that the government should provide greater support for the care of people with disabilities.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on Tratamiento jurídico de la parentalidad de las personas con discapacidad en Chile [Legal treatment of parenthood of people with disabilities in Chile]
Points of interest:
The authors study how parental relationships involving people with disabilities are handled. This study is conducted from the perspective of Family Law.
People with disabilities face barriers to becoming parents. These difficulties are linked to social prejudices. One example is the prejudice that people with disabilities are incapable of providing care.
In terms of regulations and laws, much progress has been made in protecting the rights of parents of people with disabilities. The problem is that in practice, the laws don’t work as they should.
The authors mention that Chilean laws and courts recognize the parental rights of people with disabilities. However, further progress is needed in providing support to mothers and fathers with disabilities in raising their children. A stronger effort from the State is also needed to eliminate discrimination and stigma against mothers and fathers with disabilities.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on “Vivir el paso a paso”: Itinerarios de rehabilitación de la niñez con discapacidad en narrativas de mujeres cuidadoras en la zona poniente de Santiago de Chile [“Living step by step”: Rehabilitation itineraries of children with disabilities in narratives of women caregivers in the western area of Santiago, Chile]
Points of interest:
The authors discuss the limitations of laws on access to child rehabilitation in Chile.
Often, female caregivers bear more responsibility for children’s rehabilitation activities. This leads them to create alternative plans to ensure they can continue these processes.
The text uses the term “therapeutic pathways.” This term refers to plans developed by female caregivers to support their children or grandchildren with disabilities. These plans are created when medical and social support is insufficient.
Observations and interviews were conducted with 13 female caregivers in charge of children between the ages of 1 and 9.
The female caregivers describe the difficulties they face in obtaining a correct diagnosis and treatment for their children and grandchildren, due to problems with healthcare staff and the high cost of treatment. This causes them distress and exhaustion.
Some female caregivers receive support from therapists, foundations, and the educational community in the rehabilitation process for their children and grandchildren. In this way, they develop new therapeutic plans.
It is proposed to recognize that the work of women caregivers is important in rehabilitation, and to consider that rehabilitation includes both social and health aspects.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
Comments Off on La internación psiquiátrica involuntaria en el derecho chileno: aspectos sustantivos [Involuntary psychiatric hospitalization in Chilean law: substantive aspects]
Points of interest:
The social movement of People with Disabilities questions the practice of involuntary psychiatric hospitalizations.
Involuntary psychiatric hospitalizations refer to the hospitalization of a person without their consent. These hospitalizations are made to people with mental health conditions that put them at risk. They can also put others at risk.
The article mentions that the discussion of this type of hospitalization has to do with the fact that the freedom of the people who are hospitalized is not respected.
The author proposes solutions to make psychiatric hospitalization less restrictive and more focused on the autonomy of the person.
Notes:
The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.