Núcleo Disca

Discapacidad y ciudadanía

Author Archives: Comunicaciones Núcleo DISCA

  1. Seminario: «Hacia un sistema de salud equitativo para personas con discapacidad»

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    Aunque el acceso a servicios de salud es un derecho humano, las personas con discapacidad enfrentan varias barreras en su esfuerzo por acceder a dichos servicios, reportando más necesidades de salud insatisfechas, una peor experiencia con los servicios y el personal de atención médica y peores resultados de salud. Los servicios de salud oportunos, accesibles, asequibles y de buena calidad son clave para la salud y el bienestar de todas las personas. Apuntar a la creación de un sistema de salud equitativo no solo traerá beneficios para las personas con discapacidad, sino que también tendrá un impacto positivo en la economía y la sociedad.

    Necesitamos más datos y más investigación en la que basar la elaboración de políticas públicas, estrategias y programas orientadas hacia la transformación del sistema de salud. Por esta razón, es importante entablar un diálogo fructífero entre la comunidad académica, los tomadores de decisiones y las personas con discapacidad y sus organizaciones, con el fin de identificar barreras al acceso e inequidades en la atención sanitaria y avanzar hacia un sistema de salud inclusivo.

    Por esto, Núcleo Milenio DISCA (Estudios en Discapacidad y Ciudadanía), junto a Fondecyt DisPar (Procesos reproductivos y experiencias parentales de personas con discapacidad en Chile: discriminación, adaptación y resistencia), y la Universidad Diego Portales, están organizando el Seminario “Hacia un sistema de salud equitativo”.

    Fecha y hora: 14 de diciembre de 2023 a las 09:00 horas

    Lugar: Auditorio Facultad Ciencias Sociales e Historia, Universidad Diego Portales. Ejército 333, Santiago, Chile. Piso -1 (hay ascensor)

    Inscripciones: Para su asistencia, se requiere inscripción previa en este link.

     

    Programa

    09:00 a 09:30        Bienvenida

    09:30 a 11:00        Panel 1: Hacia un sistema de Salud equitativo para personas con discapacidad. 

    Exponen:

    • Dikaios Sakellariou, Universidad de Cardiff, Reino Unido
    • Pía Venturiello, Universidad de Buenos Aires, Argentina
    • Pamela Molina, Directora Ejecutiva de la Federación Mundial de Sordos

    11:00 a 11:30            Café

    11:30 a 12:30          Panel 2: Reforma de legislación en salud mental en Chile. 

    Exponen:

    • Pablo Marshall, abogado y director alterno de Núcleo Milenio Disca
    • Marcelo Sanhueza, consejo asesor de salud mental del Ministerio de Salud
    • Alejandro Guajardo, Decano de la Facultad de Medicina,USACH

    12:30 a 13:30            Panel 3: Decisiones, experiencias y apoyos en la etapa reproductiva de las personas con discapacidad. 

    Exponen:

    • Jimena Luna, CEDETi UC, CIAPAT Chile, Fundación Vida Independiente Chile
    • Andrea Yupanqui, UMAG
    • Beatriz Miranda, Programa de estudios críticos de la “discapacidad”.
    • Melissa Hichins, UMAG y Reprodis

    Afiche del Seminario

  4. ¡No más caridad, queremos derechos, justicia y dignidad! Las marchas anti-teletón en Chile (2011-2021)

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    El objetivo de este texto es analizar el proceso de marchas anti-Teletón desarrollado en Chile en el siglo XXI, desde la perspec-tiva de sus protagonistas. Identificamos sus hitos emblemáticos, describimos las identificaciones respecto a la discapacidad puestas en juego y examinamos algunas de sus implicancias so-ciales. Para esto partimos de los aportes de los Disability Studiesy, privilegiando un enfoque cualitativo, realizamos un análisis documental de fuentes primarias y secundarias de las agrupa-ciones pioneras en esta lucha. Los resultados destacan cuatro hitos cronológicos y de sentido: 1) 2011, cuando el naciente Colectivo Palos de Ciego siembra un grito de lucha sistemático: “¡No más caridad! ¡Queremos derechos, justicia y dignidad!”; 2) 2014-2017, con la paulatina extensión de las críticas a la Teletón y la difusión de un enfoque de derechos; 3) 2018, con Acción Mu-tante y su crítica a 40 años de capacitismo desde la disidencia funcional; 4) 2019, cuando el canto de lucha fundante deviene lema de una marcha convocada por el Colectivo Nacional por la Discapacidad, en la que se movilizan más de 10 mil personas en todo el país dentro del marco del estallido social, y que finaliza con un pedido de reconocimiento constitucional para este sector de la población.

  5. Reivindicative occupational practices of activist with disabilities

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    Introduction: The occupational praxis of activists with disabilities in the Latin America has presented actions of revindication from historically marginalised territories.

    Objective: To explore and describe strategies used by Chilean activist with disabilities.

    Method: Qualitative design via three research techniques: a) 11 in-depth interviews; b) six group chat sessions; c) content analysis of eight social networks belonging to collectives of activists with disabilities in Chile.

    Results: Activists indicate various occupations for revindication as subjects with rights. These trajectories are exemplified with the following dimensions: 1) Interpellate full social participation: demanding justice and citizenship; 2) Showing defective bodies: public mobilisations; 3) Occupying institutional space by placing: bodies in the system.

    Conclusion: Dissident occupational practices intervene and transform the limited comprehension about what human vulnerability and fragility is capable of. This situation is mainly appreciated in the Global South.

  6. The Functional Model of Legal Capacity: An Analysis of the Regulation of Legal Capacity in three Common Law Jurisdictions

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    This paper introduces the developments of the functional model of legal capacity in the Common Law tradition to Spanish-speaking academic audiences. To achieve this, a brief comparison is drawn between different models to assess whether an adult lacks the necessary capacity to enter legal transactions. It is observed that, out of all these models, the functional model is the only one currently enjoying relative acceptance. For this reason, we comment on its virtues and defects. After the introductory part, this piece moves on to a study of how forensic practice in three jurisdictions that are considered examples of this legal tradition, namely England and Wales in the United Kingdom, British Columbia in Canada, and Queensland in Australia, all regulate the legal capacity of people with disabilities.

  7. Disability in the Chilean constitutional process

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    This article provides an overview of the constitution-making process currently developing in Chile from a disability perspective, focusing particularly on the process led by the so-called ‘Constitutional Convention’. First, we describe the measures taken to include persons with disabilities in the composition of the constitutional body tasked with writing the new constitution and how persons with disabilities could participate in the construction of disability as a constitutional matter. Then, we focus on several provisions of the proposal for the new constitution of Chile elaborated by the Constitutional Convention that refer to the rights of persons with disabilities. It is argued that although the proposal drafted by the Constitutional Convention was ultimately rejected, it must not be considered irrelevant to the constitutional protection of the rights of persons with disabilities in Chile. Both for substantive and procedural reasons, the constitutional process led by the Constitutional Convention offers solid ground to advance the rights of persons with disabilities as a constitutional issue.

  8. “Look at Me!”: The Public and Digital Political Campaigns of People With Disability During Chile’s Sociopolitical Crisis

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    In a context of multiple crises, an important number of people with disability competed to participate in drafting a new constitution in a remote Latin American country. Their experience shows how the way of looking at disability is structured. Based on interviews with candidates to be members of the Chilean constitutional convention, the study examines how they react to contemptuous, deindividualizing, and assistencialist ways of looking that devalue, invisibilize, and cancel them. However, both on the streets and in digital networks, they deploy strategies to counteract this “distribution of the sensible.” An adaptative strategy seeks assimilation through a “we are not different” and “we are equally capable” response to looking. A second strategy, based on differentiation, seeks to build recognition of uniqueness, with candidates hoping to receive a look that recognizes them and allows them to position themselves as leaders to follow: “I saw you, I recognize you, I follow you.”

  9. Politico-Epistemic Tensions Regarding Personal Assistance and Care for People with Disabilities: An Integrative Literature Review

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    Since the 1960s, the Independent Life Movement has demanded personal assistance as a right for people with disabilities to access autonomy. In turn, feminist movements have shown a special concern for the care and profile of the providers. Both postures have created tensions around the provision of personal assistance and care for people with disabilities. Aim: To know and analyze the scientific evidence regarding approaches to personal assistance and care for people with disabilities. Methods: An Integrative Literature Review using five databases: Dialnet, Scielo, PubMed, Scopus, and Web of Science. The Boolean combinations were: “Personal assistance AND disability”; “Personal assistance AND care AND disability”; “Care AND disability” in English, and “Asistencia personal AND discapacidad”; “Asistencia personal AND cuidados AND discapacidad”; “Cuidados AND discapacidad” in Spanish. A total of 31 scientific articles were obtained. A content analysis was then, with five analysis dimensions emerging. Results: The articles approached the positive aspects of personal assistance. Others established the need for more resources in order to not be an exclusive reality for developed countries. Profiles were made of racialized, young, migrant women as the identity behind (informal) care. From the perspective of a feminist disability care ethic, new forms of providing care are proposed, by changing the focus from individual and family responsibility, towards a social and collective focus. Conclusion: The evidence analyzed considers various dimensions of the epistemo-political tension between personal assistance and care. The meeting point between both perspectives is interdependence and autonomy; on the one side, for people with disabilities, and on the other, for the women profiled as the main caregivers.

  10. Are We Closing the Gap? Reforms to Legal Capacity in Latin America in Light of the Convention on the Rights of Persons with Disabilities

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    Este artículo examina las reformas desarrolladas en América Latina en la última década que han adaptado la legislación interna en materia de capacidad jurídica hacia el modelo de apoyos de la Convención sobre los Derechos de las Personas con Discapacidad (CDPD). Nuestro examen de las reformas en Costa Rica, Argentina, Perú y Colombia se centra en el proceso de adopción de las reformas, las principales características del modelo de apoyo implementado, algunos aspectos transitorios y de implementación de las reformas, y un examen crítico de su relación con la CDPD. Por último, este artículo explora algunos puntos débiles relacionados con los procesos de implementación de las reformas.