Núcleo Disca

Disability and citizenship

Author Archives: Comunicaciones Núcleo DISCA

  1. Núcleo DISCA starts course “Introduction to Disability Studies”

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    This Tuesday, August 8, we started the first undergraduate course that the Disca Millennium Nucleus together with the School of Sociology UDP is carrying out at the capital city of the Diego Portales University. 

    The course called “Introduction to Disability Studies” is led by the Director of the DISCA Millennium Nucleus, Florencia Herrera, along with a wide range of researchers and experts from the experience of the Nucleus. 

    In this opportunity we were accompanied by researcher Jaime Ramirez with a presentation on “What do we talk about when we talk about disability”. We had the attendance of 65 people, of which 35 were students and 30 were external listeners. Likewise, we recognized more than 30 people with disabilities -both in the classroom and telematic modality- which is why we are very happy for the wide reception and interest that this course has awakened in the community.

     

  2. Salvajes, indígenas, cojas, inválidas: Epistemologías anticapacitistas del Sur [Wild, indigenous, limp, invalid: Anticapacitic epistemologies of the South]

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    Points of interest:

    • The article presents an epistemological approach that reflects on corporeality.
    • The article’s proposal is part of Latin American critical thought.
    • The aim is to understand the different bodies located in the Global South.
    • The importance of the sex, gender, and ability system in social and epistemological organization is reiterated.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  3. ¡No más caridad, queremos derechos, justicia y dignidad! Las marchas anti-teletón en Chile (2011-2021)

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    The objective of this text was to analyze the process of anti-Tele-ton marches developed in Chile in the 21st century from the perspective of its protagonists. Thus, we identify some of its milestones, describe the nodes of meaning regarding disability put into play, and examine some of its social implications. For this, we start from the contributions of Disability Studies and favor a qualitative approach. We conduct a documentary anal-ysis of primary and secondary sources of the pioneering groups in this fight. The results highlight four chronological milestones and meaning: 1) 2011, where the nascent Palos de Ciego Collec-tive showed a systematic cry of struggle: “No more charity! We want rights, justice, and dignity!”, 2) 2014-2017, with the gradual spread of criticism of the Teletón and dissemination of a rights-based approach; 3) 2018, where Acción Mutante criticizes 40 years of ableism from functional dissidence; 4) 2019, when the founding song of struggle became the motto of a march called by the National Collective for Disability, mobilizing more than 10,000 people throughout the country, within the framework of the social outbreak and ending in the request for constitutional recognition of this sector of the population one year later.

     

    Note: This article was originally published in Spanish.

  4. Reivindicative occupational practices of activist with disabilities

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    Introduction: The occupational praxis of activists with disabilities in the Latin America has presented actions of revindication from historically marginalised territories.

    Objective: To explore and describe strategies used by Chilean activist with disabilities.

    Method: Qualitative design via three research techniques: a) 11 in-depth interviews; b) six group chat sessions; c) content analysis of eight social networks belonging to collectives of activists with disabilities in Chile.

    Results: Activists indicate various occupations for revindication as subjects with rights. These trajectories are exemplified with the following dimensions: 1) Interpellate full social participation: demanding justice and citizenship; 2) Showing defective bodies: public mobilisations; 3) Occupying institutional space by placing: bodies in the system.

    Conclusion: Dissident occupational practices intervene and transform the limited comprehension about what human vulnerability and fragility is capable of. This situation is mainly appreciated in the Global South.

     

    Note: This article was originally published in English.

  5. Nuevas regulaciones, mismos problemas: el consentimiento informado de niños, niñas y adolescentes en Chile tras la reforma a la Ley 20.584 [New regulations, same problems: the informed consent of children and adolescents in Chile after the reform to Law 20.584]

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    Points of interest:

    • Laws are being amended and new developments in health legislation are being introduced, but solutions are needed due to the problems it presents.
    • Law 21.331 presents legislative innovations in Mental Health, including health legislation considering children and adolescents.
    • It is important to consider the human rights of children and adolescents in relation to mental health.
    • Law 20.584 regulates the rights and duties of individuals in their health care.
    • Informed consent for health procedures and treatments needs solutions in the reform of the Law.
    • Children and adolescents are affected by the new regulation of the Law on informed consent.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  6. The Functional Model of Legal Capacity: An Analysis of the Regulation of Legal Capacity in three Common Law Jurisdictions

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    This paper introduces the developments of the functional model of legal capacity in the Common Law tradition to Spanish-speaking academic audiences. To achieve this, a brief comparison is drawn between different models to assess whether an adult lacks the necessary capacity to enter legal transactions. It is observed that, out of all these models, the functional model is the only one currently enjoying relative acceptance. For this reason, we comment on its virtues and defects. After the introductory part, this piece moves on to a study of how forensic practice in three jurisdictions that are considered examples of this legal tradition, namely England and Wales in the United Kingdom, British Columbia in Canada, and Queensland in Australia, all regulate the legal capacity of people with disabilities.

     

    Note: This article was originally published in Spanish and English.

  7. Disability in the Chilean constitutional process

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    This article provides an overview of the constitution-making process currently developing in Chile from a disability perspective, focusing particularly on the process led by the so-called ‘Constitutional Convention’. First, we describe the measures taken to include persons with disabilities in the composition of the constitutional body tasked with writing the new constitution and how persons with disabilities could participate in the construction of disability as a constitutional matter. Then, we focus on several provisions of the proposal for the new constitution of Chile elaborated by the Constitutional Convention that refer to the rights of persons with disabilities. It is argued that although the proposal drafted by the Constitutional Convention was ultimately rejected, it must not be considered irrelevant to the constitutional protection of the rights of persons with disabilities in Chile. Both for substantive and procedural reasons, the constitutional process led by the Constitutional Convention offers solid ground to advance the rights of persons with disabilities as a constitutional issue.

     

    Note: This article was originally published in English.

  8. Mujeres en situación de discapacidad: Cuando el acceso a derechos reproductivos sigue siendo un privilegio [Women with disabilities: When access to reproductive rights remains a privilege]

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    Points of interest:

    • The research team from Corporación Miles and external partners publish the fifth report dealing with Sexual and Reproductive Rights in Chile.
    • It is important to recognize the reality of girls and people with disabilities.
    • The report provides background information and arguments on the sexual and reproductive health status of girls and women with disabilities.
    • Miles Corporation provides this report to be useful in the work of other organizations or individuals.
    • It is important to share the desire to protect and ensure the sexual and reproductive rights of girls and women with disabilities in Chile and in other countries.

    Notes:

    • This publication corresponds to a chapter of the book “Women in situations of disability: when access to reproductive rights remains a privilege”.
    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This book is in digital format and can be downloaded for free from the Miles Corporation website.
    • This book was originally published in Spanish.

  9. “Look at Me!”: The Public and Digital Political Campaigns of People With Disability During Chile’s Sociopolitical Crisis

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    In a context of multiple crises, an important number of people with disability competed to participate in drafting a new constitution in a remote Latin American country. Their experience shows how the way of looking at disability is structured. Based on interviews with candidates to be members of the Chilean constitutional convention, the study examines how they react to contemptuous, deindividualizing, and assistencialist ways of looking that devalue, invisibilize, and cancel them. However, both on the streets and in digital networks, they deploy strategies to counteract this “distribution of the sensible.” An adaptative strategy seeks assimilation through a “we are not different” and “we are equally capable” response to looking. A second strategy, based on differentiation, seeks to build recognition of uniqueness, with candidates hoping to receive a look that recognizes them and allows them to position themselves as leaders to follow: “I saw you, I recognize you, I follow you.”

     

    Note: This article was originally published in English.