Núcleo Disca

Disability and citizenship

Archive

  1. Community Care: Experiences and Tensions of Informal Caregivers and People with Disabilities in the O’Higgins Region, Chile [Cuidados sociocomunitarios: experiencias y tensiones de cuidadoras informales y personas con discapacidad en la región de O’Higgins, Chile]

    Comments Off on Community Care: Experiences and Tensions of Informal Caregivers and People with Disabilities in the O’Higgins Region, Chile [Cuidados sociocomunitarios: experiencias y tensiones de cuidadoras informales y personas con discapacidad en la región de O’Higgins, Chile]

    Point of interest:

    • Community care seeks shared support between people with disabilities and their communities.
    • The study investigated experiences in the O’Higgins Region, Chile.
    • Interviews were conducted with people with disabilities and their caregivers.
    • The results show that care systems are cooperative, interconnected, and shared.
    • Families, especially women, experience high stress and effort from providing care.
    • A public care system is needed to support families and local communities.

    Notes:

    • The points of interest were written for dissemination purposes and were based on the publication. The points of interest cannot be cited as they are not part of the publication.
    • This article was originally published in Spanish.

  2. Political Representation and Electoral Quotas for People with Disabilities [Representación política y cuotas electorales para personas con discapacidad]

    Comments Off on Political Representation and Electoral Quotas for People with Disabilities [Representación política y cuotas electorales para personas con discapacidad]

    Points of interest:

    • People with disabilities face barriers when participating in politics.
    • Using quota systems in elections is proposed.
    • Quotas reserve positions in elections to achieve greater inclusion.
    • There are few studies on quotas for people with disabilities.
    • The research examines the example of quotas for women and Indigenous peoples.
    • Experiences from four countries are studied: Chile, Uganda, Egypt, and Rwanda.
    • It concludes that quotas help, but organizations of people with disabilities must be consulted.

    Notes:

    • The points of interest were written for dissemination purposes and were based on the publication. The points of interest cannot be cited as they are not part of the publication.
    • This article was originally published in Spanish.

  3. Right to Vote and the Politics of Recognition [Derecho a sufragio y la política del reconocimiento]

    Comments Off on Right to Vote and the Politics of Recognition [Derecho a sufragio y la política del reconocimiento]

    Points of interest:

    • The study analyzes the right to vote as a form of recognition.
    • Voting is not just choosing, but also showing that a person is valuable in society.
    • When voting is not allowed, it takes away people’s dignity and affects their autonomy.
    • There are groups of people who cannot vote today.
    • The article analyzes the cases of people in prison, people with intellectual disabilities, and minors.
    • The text aims to provide ideas to improve democracy.

    Notes:

    • The points of interest were written for dissemination purposes and were based on the publication. The points of interest cannot be cited as they are not part of the publication.
    • This article was originally published in Spanish.

  4. ‘When you live the problem, it is different’: political representation of people with disabilities in Chile

    Comments Off on ‘When you live the problem, it is different’: political representation of people with disabilities in Chile

    Points of interest:

    • In 2021, more people with disabilities ran for office in Chile than in previous elections, exercising their right to political participation. We interviewed eighteen of these candidates to understand why they wanted to represent their community in writing the new Constitution.
    • The candidates argued that politicians without disabilities cannot fully understand their lives. They believe that having the lived experience of a disability gives them unique knowledge to represent the needs and rights of their group effectively.
    • Although the law affirms their right to run for office, becoming a representative was very hard. Candidates faced a lack of money and discrimination. This shows that legal quotas are a good start, but they are not enough to guarantee fair representation.
    • Most candidates did not win, but their campaigns were still a success for representation. By simply being present, they showed society that people with disabilities are not just people who need help, but leaders who can make decisions.

    Notes:

    • This article was originally published in English.

  5. Chilean Common Pots as a Situated Collective Occupation: Contributions to an Empowering and Community-Allied Occupational Therapy

    Comments Off on Chilean Common Pots as a Situated Collective Occupation: Contributions to an Empowering and Community-Allied Occupational Therapy

    Since its first edition in 2005, Occupational Therapies Without Borders has been a key text in many of the world’s leading occupational therapy education programs. It focuses on how occupational therapists can affect positive societal change through nurturing participation parity and engagement in occupation.

    This book comprehensively covers theory, methodology and practice in the context of working with different cultures and geographies. It explores occupational therapy and social class, race, disability, marginality and sexuality from a critical theory perspective, and discusses practical approaches.

    The book has been fully revised to reflect emerging concerns for occupational therapy in different and health and social systems globally. It will motivate undergraduate and postgraduate occupational therapy students to explore the transformative potential of their practice.

    Notes:

    • This is the summary of the book “Occupational Therapies Without Borders, 3rd Edition” by Elsevier publishing. The text “Chilean Common Pots as a Situated Collective Occupation: Contributions to an Empowering and Community-Allied Occupational Therapy” corresponds to Chapter 2 of the book.
    • This book is not open access. It is available for purchase.
    • This book was originally published in English.

  6. Participation and Collective Resistance of Women with Disabilities: Lessons for a Feminist Occupational Therapy from the South

    Comments Off on Participation and Collective Resistance of Women with Disabilities: Lessons for a Feminist Occupational Therapy from the South

    Since its first edition in 2005, Occupational Therapies Without Borders has been a key text in many of the world’s leading occupational therapy education programs. It focuses on how occupational therapists can affect positive societal change through nurturing participation parity and engagement in occupation.

    This book comprehensively covers theory, methodology and practice in the context of working with different cultures and geographies. It explores occupational therapy and social class, race, disability, marginality and sexuality from a critical theory perspective, and discusses practical approaches.

    The book has been fully revised to reflect emerging concerns for occupational therapy in different and health and social systems globally. It will motivate undergraduate and postgraduate occupational therapy students to explore the transformative potential of their practice.

    Notes:

    • This is the summary of the book “Occupational Therapies Without Borders, 3rd Edition” by Elsevier publishing. The text “Participation and Collective Resistance of Women with Disabilities: Lessons for a Feminist Occupational Therapy from the South” corresponds to Chapter 17 of the book.
    • This book is not open access. It is available for purchase.
    • This book was originally published in English.

  7. Tejer la memoria, bordar la diferencia: artivismo textil y agencia política de personas con discapacidad [Weaving the memory, stitching the difference: textile activism and political agency of people with disabilities]

    Comments Off on Tejer la memoria, bordar la diferencia: artivismo textil y agencia política de personas con discapacidad [Weaving the memory, stitching the difference: textile activism and political agency of people with disabilities]

    Points of interest:

    • The joint work with the Colectivo Nacional por la Discapacidad and the Embroiderers de la Villa Frei shows how community practices can challenge hegemonic narratives and open spaces of epistemic justice for historically marginalized groups.
    • Collective embroidery as an artivist and political practice.
    • The article highlights embroidery not only as an artistic expression, but as a tool of denunciation, resistance and political action. The textile works as a means to make injustices visible and question official narratives about memory and citizenship.
    • From an ethnographic and collaborative perspective, embroidery appears as a situated epistemological practice that integrates bodily experience, affectivity and collective narrative.
    • The article denounces how capacitative logics persist in cultural and public spaces, highlighting the exclusion of people with disabilities in Chile.
    • One of the central themes is how collective embroidery allows to work out pain and mourning in a community way.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in Spanish.

  8. Decolonial feminist analysis of personal assistance policies in EU member states

    Comments Off on Decolonial feminist analysis of personal assistance policies in EU member states

    Points of interest:

    • Personal assistance (PA) is defined as a human right for the independent life of persons with disabilities.
    • The traditional eurocentric frameworks of the PA are criticized, in which it is pointed out that the current development model is colonial, capacitative, heteropatriarcal and eurocentric.
    • The decolonial feminist Latin American contribution is used as a theoretical and political framework to confront and rethink the dominant models of care.
    • Although the PA is formally established in most EU member states, the article reveals that its implementation is very uneven. The analysis exposes how current AP agreements still reproduce knowledge hierarchies, directly affecting who defines needs, who decides, and what knowledges are considered legitimate.
    • The article makes visible the tensions and limits of Eurocentric policies, the decolonial feminist approach not only criticizes but also proposes community-based alternatives to PA that are relevant and applicable for both Latin America and Europe.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in English.

  9. “Vivir el paso a paso”: Itinerarios de rehabilitación de la niñez con discapacidad en narrativas de mujeres cuidadoras en la zona poniente de Santiago de Chile [“Living step by step”: Rehabilitation itineraries of children with disabilities in narratives of women caregivers in the western area of Santiago, Chile]

    Comments Off on “Vivir el paso a paso”: Itinerarios de rehabilitación de la niñez con discapacidad en narrativas de mujeres cuidadoras en la zona poniente de Santiago de Chile [“Living step by step”: Rehabilitation itineraries of children with disabilities in narratives of women caregivers in the western area of Santiago, Chile]

    Points of interest:

    • The authors discuss the limitations of laws on access to child rehabilitation in Chile.
    • Often, female caregivers bear more responsibility for children’s rehabilitation activities. This leads them to create alternative plans to ensure they can continue these processes.
    • The text uses the term “therapeutic pathways.” This term refers to plans developed by female caregivers to support their children or grandchildren with disabilities. These plans are created when medical and social support is insufficient.
    • Observations and interviews were conducted with 13 female caregivers in charge of children between the ages of 1 and 9.
    • The female caregivers describe the difficulties they face in obtaining a correct diagnosis and treatment for their children and grandchildren, due to problems with healthcare staff and the high cost of treatment. This causes them distress and exhaustion.
    • Some female caregivers receive support from therapists, foundations, and the educational community in the rehabilitation process for their children and grandchildren. In this way, they develop new therapeutic plans.
    • It is proposed to recognize that the work of women caregivers is important in rehabilitation, and to consider that rehabilitation includes both social and health aspects.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.