Núcleo Disca

Disability and citizenship

Archive

  1. Access to general health care among people with disabilities in Latin America and the Caribbean: a systematic review of quantitative research

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    Summary:

    In Latin America and the Caribbean (LAC), there are 85 million people with disabilities (PwD). They often experience barriers accessing healthcare and die, on average, 10-20 years earlier than those without disabilities. This study aimed to systematically review the quantitative literature on access to general healthcare among PwD, compared to those without disabilities, in LAC. A systematic review and narrative synthesis was conducted. We searched in EMBASE, MEDLINE, LILACS, MedCarib, PsycINFO, SciELO, CINAHL, and Web of Science. Eligible articles were peer-reviewed, published between January 2000 and April 2023, and compared healthcare access (utilization, coverage, quality, affordability) between PwD and without disabilities in LAC. The search retrieved 16,538 records and 30 studies were included, most of which had a medium or high risk of bias (n = 23; 76%). Overall, the studies indicated that PwD use healthcare services more than those without disabilities. Some evidence indicated that women with disabilities were less likely to have received cancer screening. Limited evidence showed that health services afford-ability and quality were lower among PwD. In LAC, PwD appear to experience health inequities, although large gaps exist in the current evidence. Harmonization of disability and health access data collection is urgently needed to address this issue.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in English.

  2. Accessing Sexual and Reproductive Health Services in Chile: Women with Disabilities and Their Experience with Gynaecological and Obstetric Violence

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    Points of interest:

    • The study doesn’t just look at statistics; it uses a feminist phenomenological approach.
    • This means it prioritizes the lived experience and the “first-person” perspective of the women, acknowledging that their bodies are not just medical subjects but sites where gender and disability intersect.

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based solely on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in English.

  3. Repertorios en resistencia de la discapacidad en el estallido social chileno [Disability’s repertoires in resistance in the Chilean social outbreak]

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    Points of interest:

    • This article aims to reconstruct and politically interrogate the space of dispute where the archive of the “disabled” body and its current repertoires of resistance reside.
    • The central elements of this article are the disability archives in Chile and the repertoires embodied in resistance to said archive within the framework of the so-called Chilean social “outbreak”.

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  4. Motherhood, disability and rurality: Descolonizing practices and knowledge via the Las Quiscas case in Chile

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    Points of interest:

    • Women with disabilities face a number of obstacles in the exercise of their motherhood.
    • The objective of this article was to investigate the life trajectory of a woman with a visual disability regarding her motherhood process in a rural area of the south-central region of Chile.
    • Various techniques were used in this case study, such as in-depth interviews and photographic records.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in English.

  5. BENDI: Improving Cognitive Assessments in Toddlers and Children with Down Syndrome Using Stealth Assessment

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    Points of interest:

    • The BENDI study (Battery for Neuropsychological Assessment in Intellectual Disability) presents a new digital tool designed to overcome the limitations of traditional tests in the assessment of infants with Down Syndrome.
    • He focused on developing a battery mediated by digital technology that allows exploring key cognitive domains through the concept of stealth assessment, in which children with Down syndrome can perceive the assessment as a game.
    • Sixty-eight children with Down syndrome were evaluated from 20 months to 12 years of age.
    • Four tasks were tested, which were provided as a game-like experience.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in English.

  6. COVID-19’s impact on worker stress in human service organizations: The mediating role of inclusion

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    Points of interest:

    • This article highlights the importance of relationships, decision-making processes, and access to information in reducing stress in post-pandemic scenarios for organizations that traditionally manage crises.
    • Due to COVID-19, human service organizations faced extraordinary challenges.
    • The objective of this article is to analyze the impact of COVID-19 on work stress and the role of inclusion among workers in social service organizations in Chile during the pandemic.
    • The sample consisted of 173 workers from civil society organizations who were contacted during the pandemic.
    • The study’s hypothesis confirmed that people most affected by the pandemic experience higher levels of work-related stress.

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in English.

  7. Care cooperatives in Uruguay, Argentina and Chile; a look at their hinderers and opportunities to achieve development

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    Points of interest:

    • The article presents a study on the factors that strengthen care cooperatives in Uruguay, Argentina, and Chile.
    • The aim of this article is to explore the experiences and perceptions of people associated with the world of care cooperatives.
    • Cooperatives encounter barriers related to gender equality, labor market dynamics, and welfare conditions that prevent them from following the established guidelines.
    • Sixteen interviews were conducted.
    • The findings are based on the challenges faced by care cooperatives, including those associated with gender issues, lack of experience, and the essential need for both public and private support.
    • This article establishes a dialogue around cooperatives in the Southern Cone of Latin America.

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in English.

  8. Aproximaciones feministas a la discapacidad: Relaciones de poder, emociones y posicionamiento hacia el campo [Feminist approaches to disability: power relations, emotions and positioning towards the field]

    Comments Off on Aproximaciones feministas a la discapacidad: Relaciones de poder, emociones y posicionamiento hacia el campo [Feminist approaches to disability: power relations, emotions and positioning towards the field]

    Points of interest:

    • The article presents a feminist approach to the field of disability, addressed from a methodological perspective.
    • It introduces reflective work around experience.
    • Grounded theory is used from a feminist paradigm and the disability perspective.
    • The findings in the fieldwork focus on emotions and reflexivity through the use of a logbook.
    • From a feminist perspective, it is hoped to produce conscious and challenging knowledge of the places of enunciation of the actors and actresses.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  9. Salvajes, indígenas, cojas, inválidas: Epistemologías anticapacitistas del Sur [Wild, indigenous, limp, invalid: Anticapacitic epistemologies of the South]

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    Points of interest:

    • The article presents an epistemological approach that reflects on corporeality.
    • The article’s proposal is part of Latin American critical thought.
    • The aim is to understand the different bodies located in the Global South.
    • The importance of the sex, gender, and ability system in social and epistemological organization is reiterated.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.