Núcleo Disca

Disability and citizenship

Author Archives: Comunicaciones Núcleo DISCA

  1. Online seminar: “Disability and daily mobility”.

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    Descripción de Imagen: Afiche con los logos institucionales de Disca y de #CentrosAnid e iniciativa Milenio, sobre los títulos se lee: “Discapacidad y movilidad cotidiana”, “Ciclo de Seminarios en Línea”, además de los rostros de los tres expositores junto a sus nombres y cargos. Al centro un recuadro con las indicaciones del evento: Jueves 31 de agosto, 19:00 hrs.

    • The seminar will address the ways in which disability is understood by our transportation and planning systems.
    • Three researchers will examine the adaptations and efforts that people with disabilities make on a daily basis to move around urban and rural areas, as well as the injustices that persist in national mobility infrastructures and policies.

    In response to the question “What costs do people with disabilities assume when moving around the territory?”, the DISCA Millennium Nucleus has invited three researchers to investigate experiences, organizations, policies and research on the daily mobility of people with disabilities.

    We will be joined by Mariela Gaete Reyes, an academic from the Housing Institute of the Faculty of Architecture and Urbanism of the University of Chile. She is dedicated to research on accessibility and disability and to teaching in the Architecture program, in the Master in Residential Habitat and in the Doctorate in Territory, Space and Society, a program in which she is part of the academic committee.

    The sociologist Diego Solsona, Master in Social Research and Development from the Universidad de Concepción and Doctor of Social Sciences in Territorial Studies from the Universidad de los Lagos, will also present. He works as a postdoctoral researcher in the Anillos project “Territorial Inequalities”. He is also a collaborating professor in the anthropology program at the Universidad de Los Lagos. His main lines of research are: spatial mobilities, citizen participation and social imaginaries in people with disabilities.

    In addition, DISCA researcher Daniel Muñoz, PhD in Human Geography (University of Edinburgh), Master in Urban Development (PUC) will present his work. He is a postdoctoral researcher at the Housing Institute of the University of Chile. His research focuses on everyday mobility practices of people with disabilities, with attention to care and interdependence. Methodologically, Daniel specializes in ethnography and ethnomethodological video analysis.

    If you would like to attend, register at this link. 

  2. Embodiment and Mobility: Mappings of the Common and Territories in Friction

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    The book brings together contributions from thirteen authors who present conceptual reflections, descriptions of practices, and methodological insights that are useful for understanding embodiments and mobilities. From this perspective, multiple sensory, affective, material, and infrastructural factors gain renewed importance, offering more complex—and at the same time more concrete—descriptions of everyday ways of moving.

    Given the diversity of its content, this is a crossroads of analytical approaches that gradually trace cartographies of what embodiments and mobilities contribute to the relational understanding of multiple areas of social life. This understanding can lead to pathways for urban transformation aimed at creating more livable, inclusive, and just territories for their inhabitants.

    Notes:

    • This book is available as open access.
    • This book was originally published in Spanish.

  3. Webinar: Parents and Parenting with Disabilities, Perspectives from Chile

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    On June 28, Brandeis University held the webinar “Parents and Parenting with Disabilities: Perspectives from Chile” with three Chilean researchers, including Florencia Herrera, Director of DISCA and PhD in Social and Cultural Anthropology from the University of Barcelona.

    Jimena Luna, Industrial Civil Engineer and Project Coordinator at CEDETi UC, and Soledad Véliz, Doctorate in Education from the Pontificia Universidad Católica de Chile and researcher at CEDETi UC, participated in the dialogue.

    To learn more about their perspectives on parenting and raising children with disabilities in Chile, as well as their experiences and research, you can review their webinar here.

  4. DISCA Nucleus call for papers on “The representation of disability”

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    The DISCA Millennium Nucleus is pleased to invite the academic community to submit their proposals for presentations for our next seminar entitled “The Representation of Disability in Policy and Research”. The event will take place on October 12, 2023 at the Universidad Austral de Chile, Campus Isla Teja, Valdivia, Chile, in face-to-face mode.

    We seek to generate an academic, rigorous and diverse dialogue about disability in general and the issue of disability representation in policy and academic research. In addition, we seek to generate a meeting space for people who research on disability.

    The seminar will have two parts: the first will address the particular issue of disability representation in policy and research. The second part will be open to the presentation of research on disability in various topics related to the work of Núcleo DISCA.

    Check the complete rules by clicking on this link.

  5. Núcleo DISCA starts course “Introduction to Disability Studies”

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    This Tuesday, August 8, we started the first undergraduate course that the Disca Millennium Nucleus together with the School of Sociology UDP is carrying out at the capital city of the Diego Portales University. 

    The course called “Introduction to Disability Studies” is led by the Director of the DISCA Millennium Nucleus, Florencia Herrera, along with a wide range of researchers and experts from the experience of the Nucleus. 

    In this opportunity we were accompanied by researcher Jaime Ramirez with a presentation on “What do we talk about when we talk about disability”. We had the attendance of 65 people, of which 35 were students and 30 were external listeners. Likewise, we recognized more than 30 people with disabilities -both in the classroom and telematic modality- which is why we are very happy for the wide reception and interest that this course has awakened in the community.

     

  6. ¡No más caridad, queremos derechos, justicia y dignidad! Las marchas anti-teletón en Chile (2011-2021)

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    The objective of this text was to analyze the process of anti-Tele-ton marches developed in Chile in the 21st century from the perspective of its protagonists. Thus, we identify some of its milestones, describe the nodes of meaning regarding disability put into play, and examine some of its social implications. For this, we start from the contributions of Disability Studies and favor a qualitative approach. We conduct a documentary anal-ysis of primary and secondary sources of the pioneering groups in this fight. The results highlight four chronological milestones and meaning: 1) 2011, where the nascent Palos de Ciego Collec-tive showed a systematic cry of struggle: “No more charity! We want rights, justice, and dignity!”, 2) 2014-2017, with the gradual spread of criticism of the Teletón and dissemination of a rights-based approach; 3) 2018, where Acción Mutante criticizes 40 years of ableism from functional dissidence; 4) 2019, when the founding song of struggle became the motto of a march called by the National Collective for Disability, mobilizing more than 10,000 people throughout the country, within the framework of the social outbreak and ending in the request for constitutional recognition of this sector of the population one year later.

     

    Note: This article was originally published in Spanish.

  7. Reivindicative occupational practices of activist with disabilities

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    Introduction: The occupational praxis of activists with disabilities in the Latin America has presented actions of revindication from historically marginalised territories.

    Objective: To explore and describe strategies used by Chilean activist with disabilities.

    Method: Qualitative design via three research techniques: a) 11 in-depth interviews; b) six group chat sessions; c) content analysis of eight social networks belonging to collectives of activists with disabilities in Chile.

    Results: Activists indicate various occupations for revindication as subjects with rights. These trajectories are exemplified with the following dimensions: 1) Interpellate full social participation: demanding justice and citizenship; 2) Showing defective bodies: public mobilisations; 3) Occupying institutional space by placing: bodies in the system.

    Conclusion: Dissident occupational practices intervene and transform the limited comprehension about what human vulnerability and fragility is capable of. This situation is mainly appreciated in the Global South.

     

    Note: This article was originally published in English.

  8. Informed Consent and Support for Decision-Making: A Critical Review of Legal Reforms in Latin America

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    Persons with intellectual and cognitive disabilities (hereinafter PICDs) face significant barriers when accessing health treatment and satisfying their right to enjoy the highest possible standard of health . This is worrying to the extent that these persons also experience a greater need for such treatments and have higher mortality and morbidity rates than the rest of the population. These difficulties impact access to health promotion policies and curative health treatments, and include, for example, inadequate time allocation by health care workers, discrimination, lack of reasonable adjustments or poor accessibility to premises and health systems. These barriers also affect the ability to select health care treatment and to control how it is provided. The latter affects PICDs in a particularly acute way due to a diversity of factors, which include, on the one hand, barriers associated with their impairments, such as those that affect communication, perception or memory, and, on the other hand, barriers socially constructed in their environment, which include, among others, paternalistic attitudes, lack of support from their caregivers and lack of expertise and training of health care workers, which often leads to discrimination and mistreatment.

    To the extent that historically, PICDs have been subjected to regimes of legal incapacity where they are appointed a representative to make decisions for them on property and personal matters – as is the case with interdiction and guardianship in Latin America –, health legislation has relied on these institutions to determine who should make decisions regarding their health treatment. with the emergence of the debate on the need to provide informed consent (hereinafter IC) in the second half of the 20Thcentury, which reconstructs the doctor-patient relationship in terms of individual autonomy, the question has arisen about how PICDs can authorise health treatment. The default legal response, to the extent that IC appears as a personal legal act, is that if the person is under a regime of legal incapacity, the person who must provide IC as a substitute is their legal representative.

     

    Notes:

    • This publication is a chapter from the book “Legal Capacity, Disability and Human Rights”
    • This book is not free to access.
    • This book was published in English.

  9. The Functional Model of Legal Capacity: An Analysis of the Regulation of Legal Capacity in three Common Law Jurisdictions

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    This paper introduces the developments of the functional model of legal capacity in the Common Law tradition to Spanish-speaking academic audiences. To achieve this, a brief comparison is drawn between different models to assess whether an adult lacks the necessary capacity to enter legal transactions. It is observed that, out of all these models, the functional model is the only one currently enjoying relative acceptance. For this reason, we comment on its virtues and defects. After the introductory part, this piece moves on to a study of how forensic practice in three jurisdictions that are considered examples of this legal tradition, namely England and Wales in the United Kingdom, British Columbia in Canada, and Queensland in Australia, all regulate the legal capacity of people with disabilities.

     

    Note: This article was originally published in Spanish and English.