Núcleo Disca

Disability and citizenship

Archive

  1. Misunderstanding and Overprotection: The Impact of Research Ethics Committees on Social Disability Studies in Chile

    Comments Off on Misunderstanding and Overprotection: The Impact of Research Ethics Committees on Social Disability Studies in Chile

    Points of interest:

    • This article analyzes the experiences of 18 researchers in Chile during the ethical evaluation of their projects on disability. Through interviews and a qualitative approach, four main issues were found:
      1. Ethics Committees often have an infantilizing view of disability and consider participants as “patients,” even when the study is not related to health.
      2. These views lead to a widespread belief about their (in)ability to give consent, which reduces their participation.
      3. Ethics Committees often ask for excessive demands, such as requiring a third party (usually a caregiver or family member) to validate the participation of people with disabilities.
      4. These practices have negative consequences: they exclude the voices of people with disabilities and replace them with caregivers; certain topics or populations are no longer studied; and researchers choose other topics out of fear of not being able to publish or losing their jobs.

    Notes:

    • The points of interest were written for dissemination purposes and were based on the publication. The points of interest cannot be cited as they are not part of the publication.
    • This article was originally published in English.

  2. Stage Practice as Research: Situated Research-Creation Methodology in Robot: Neurodivergent Echoes [Práctica escénica como investigación: metodología situada de investigación-creación en Robot: Ecos Neurodivergentes]

    Comments Off on Stage Practice as Research: Situated Research-Creation Methodology in Robot: Neurodivergent Echoes [Práctica escénica como investigación: metodología situada de investigación-creación en Robot: Ecos Neurodivergentes]

    Points of interest:

    • Theater reproduces ideas about which bodies are considered normal.
    • Plays decide who can act and who is seen as fit for the stage.
    • The study analyzes the play “Robot: Ecos Neurodivergentes”.
    • It investigates how neurodivergent people create art and express themselves in Chilean theater.
    • It proposes creating plays to generate new knowledge.
    • It shows that theater can transform society.
    • It invites using acting to include differences and value all people.

    Notes:

    • The points of interest were written for dissemination purposes and were based on the publication. The points of interest cannot be cited as they are not part of the publication.
    • This article was originally published in English.

  3. “How likely are people with disabilities to be present?”: interviews on the ableist logic of Latin American academia

    Comments Off on “How likely are people with disabilities to be present?”: interviews on the ableist logic of Latin American academia

    Points of interest: 

    • The study shows how ableism (treating people unfairly because their body or mind is different) affects universities in Latin America.
    • It includes 51 interviews with researchers and activists from different countries.
    • Three barriers appear: closed university cultures, unfair workloads, and exclusion of people with intellectual disabilities.
    • Participants said that unfair ideas and old habits make universities unequal.
    • The authors suggest more accessible and inclusive ways to do research.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in English.

  4. An infrastructure of embodied practices: How disabled people become part of public transport in Santiago de Chile

    Comments Off on An infrastructure of embodied practices: How disabled people become part of public transport in Santiago de Chile

    Points of interest:

    • The article analyzes the experiences and practices of public transport use by people with disabilities.
    • The article calls for recognition of invisible efforts, and transport planning to adopt perspectives that value and consider these “ways of doing” in their urban design and management practices.
    • The findings allow to describe transport infrastructures as an assemblage of bodies and materialities, inviting to recognize people with disabilities not only as beneficiaries of transport, but as constituent subjects of it.
    • The article was based on ethnographic data and multimodal video analysis.
    • Multiple ways in which the bodily practices of persons with disabilities are part and support the functioning of public transport in Santiago are examined.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in English.

  5. Tejer la memoria, bordar la diferencia: artivismo textil y agencia política de personas con discapacidad [Weaving the memory, stitching the difference: textile activism and political agency of people with disabilities]

    Comments Off on Tejer la memoria, bordar la diferencia: artivismo textil y agencia política de personas con discapacidad [Weaving the memory, stitching the difference: textile activism and political agency of people with disabilities]

    Points of interest:

    • The joint work with the Colectivo Nacional por la Discapacidad and the Embroiderers de la Villa Frei shows how community practices can challenge hegemonic narratives and open spaces of epistemic justice for historically marginalized groups.
    • Collective embroidery as an artivist and political practice.
    • The article highlights embroidery not only as an artistic expression, but as a tool of denunciation, resistance and political action. The textile works as a means to make injustices visible and question official narratives about memory and citizenship.
    • From an ethnographic and collaborative perspective, embroidery appears as a situated epistemological practice that integrates bodily experience, affectivity and collective narrative.
    • The article denounces how capacitative logics persist in cultural and public spaces, highlighting the exclusion of people with disabilities in Chile.
    • One of the central themes is how collective embroidery allows to work out pain and mourning in a community way.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in Spanish.

  6. Teatro y artivismo anticapacitista [Theater and anti-peacetic artivism]

    Comments Off on Teatro y artivismo anticapacitista [Theater and anti-peacetic artivism]

    Points of interest: 

    • The article presents the anticapacitic artivism in the experience of the group Compañía de Teatro Visión Imposible, composed of visually impaired people in Punta Arenas, Chile.
    • Artivism blends art and activism. The authors propose it as a form of resistance.
    • Artivism is understood as an expressive and political strategy and allows people to question the social order capacitist.
    • Capacitism measures the value of people based on an ideal body type. Capacitism leaves out all the bodies that are different, like people with disabilities.
    • Anti-capitalism values the differences in people’s minds and bodies. It is a form of fighting against capacitism.
    • The article shows a case study of the Theatre Company “Vision Impossible”. Focal groups and photo-ethnography were integrated. Creative preparations were also made to create a performance.
    • It is shown that there are strong relationships between the members of the Company. These relationships help them to recognize their identities as persons with disabilities. The members manage to recognize these identities through art.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in Spanish.

  7. Todo lo que me dicen que no puedo hacer [All the Things They Say I Can’t Do]

    Leave a Comment

    Published by Muñeca de Trapo, this book brings together short stories based on the real lives of Chileans with disabilities who have paved the way in various fields. Through stories written by Florencia Herrera and illustrated by Pablo Luebert, the work aims to provide diverse role models for children and youth, demonstrating that disability does not define the limits of what can be achieved.

    The book shares the life stories of:

    • Pamela Molina: A deaf woman and Executive Director of the World Federation of the Deaf.

    • Sebastián Solorza: An actor with Down Syndrome, TV series star, and winner of the “Best Newcomer” award at the 2023 Caleuche Awards.

    • Francisca Mardones: Paralympic shot put gold medalist at Tokyo 2020 and recipient of the 2022 National Sports Award.

    • Héctor Polanco: An activist with schizophrenia and member of the Villa Solidaria ALSINO.

    All the Things They Say I Can’t Do is sponsored by DISCA, with support from the National Research and Development Agency (ANID) and the Millennium Scientific Initiative, through their Outreach to the External Environment funds.

    📙 You can view the PDF version here.

    🔊 🎧 We also have an audiobook version! 🔊 🎧
    Click here to listen.

  8. Cairo-Lisboa 2024: Três Décadas de Direitos e Saúde Sexual e Reprodutiva em Debate

    Comments Off on Cairo-Lisboa 2024: Três Décadas de Direitos e Saúde Sexual e Reprodutiva em Debate

    Summary:

    “This compilation brings together a collection of academic texts selected within the framework of the CAIRO-LISBON2024 conference — The Challenges of Sexual and Reproductive Rights and Health in Portugal, in Lusophone Countries and in Latin America, held online by ISCTE—University Institute of Lisbon, on December 5 and 6, 2024, with national and international participants. This conference was organized to commemorate the 30th anniversary of the International Conference on Population and Development, held in Cairo in 1994, a historic milestone that redefined the way development policies are conceived, placing human rights, gender equality, and sexual and reproductive health at the center of the global agenda.”

     

    Notes:

    • The following summary was provided by Pía Rodríguez Garrido, a member of the book’s organizing team. It is the summary of the book in Spanish.
    • This book is not free to access. It is available for purchase in eBook format at the following link: https://repositorio.iscte-iul.pt/handle/10071/35454
    • This book was originally published in Portuguese.

  9. Accesibilidad en el hábitat residencial: Recomendaciones de Diseño [Accessibility in Residential Habitat: Design Recommendations]

    Leave a Comment

    This text aims to contribute, from a scientific research perspective, to the accessible architectural design of residential habitats. It presents design recommendations at the different territorial scales studied: housing, housing complexes, and neighborhoods. These recommendations are intended for use by residents, construction companies, and agents involved in the design and implementation of public policies in the housing and urban fields. The contributions of Corporación Accesible and SERVIU are acknowledged through their manuals and guidelines on this subject.

    This book is intended for professionals and agents involved in the design and production of habitat: architects, urban planners, builders, sponsoring entities, and policymakers in the housing and urban sectors. It is also aimed at students in related fields, educators engaged with these topics, and people with different disabilities and their families.

    Notes:

    • This book is not open-access and is only available for purchase through Editorial Universitaria.
    • This book was published in Spanish.