Núcleo Disca

Disability and citizenship

Author Archives: Comunicaciones Núcleo DISCA

  1. Socio-community care of people with disabilities: Experiences of caregivers living in south-central zone of Chile

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    Points of interest:

    • People share caregiving responsibilities differently. It varies depending on gender, body type, and individual responsibilities.
    • The aim of this article is to analyze the perceptions of caregivers of people with disabilities regarding community-based care. This type of care refers to care provided within the community.
    • The researchers conducted 10 interviews with women who are caregivers for people with disabilities.
    • Community-based care is formed by the families of people with disabilities. These families put in a great deal of effort to create these care communities, which can lead to exhaustion.
    • Family-run care communities are very important. These communities help meet the needs of people with disabilities.
    • The authors point out the urgent need to create more family-friendly and disability-friendly care systems. They propose that the government should provide greater support for the care of people with disabilities.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in English.

  2. Tratamiento jurídico de la parentalidad de las personas con discapacidad en Chile [Legal treatment of parenthood of people with disabilities in Chile]

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    Points of interest:

    • The authors study how parental relationships involving people with disabilities are handled. This study is conducted from the perspective of Family Law.
    • People with disabilities face barriers to becoming parents. These difficulties are linked to social prejudices. One example is the prejudice that people with disabilities are incapable of providing care.
    • In terms of regulations and laws, much progress has been made in protecting the rights of parents of people with disabilities. The problem is that in practice, the laws don’t work as they should.
    • The authors mention that Chilean laws and courts recognize the parental rights of people with disabilities. However, further progress is needed in providing support to mothers and fathers with disabilities in raising their children. A stronger effort from the State is also needed to eliminate discrimination and stigma against mothers and fathers with disabilities.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  3. Indigenous Knowledge and Practices on Disability in Latin America

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    Summary:

    This book presents Indigenous knowledge, cultural practices, and lived experiences of disability among Indigenous people in Latin America. It explores worldviews, ways of life in community, and the struggle for rights and recognition of communities, which shapes care, healing, and social participation. This compilation of 12 chapters written by 18 authors brings together perspectives on history, education, health, territorial economy, communication, and social sciences. Readers will find unique perspectives that are often overlooked, such as access to land, the preservation of Indigenous languages, Indigenous sign languages, genealogies, and community initiatives on disability. The authors highlight how Indigenous communities create inclusive spaces, resist discrimination, and preserve their cultural identity, offering both theoretical reflections and practical approaches.

    By combining academic research with lived experience accounts, this book is an essential resource for scholars in the fields of disability studies, Indigenous rights, anthropology, social policy, and anyone seeking to understand the intersection of culture, disability, and social justice in Latin America.

     

    Notes:

    • The following summary was translated by the Millennium Nucleus DISCA and is based exclusively on the book’s summary. Therefore, it cannot be used for citations or references.
    • This book is not free. It is available for purchase as an eBook at the following link: https://link.springer.com/book/10.1007/978-3-032-06721-0
    • This book was originally published in English.

  6. “Vivir el paso a paso”: Itinerarios de rehabilitación de la niñez con discapacidad en narrativas de mujeres cuidadoras en la zona poniente de Santiago de Chile [“Living step by step”: Rehabilitation itineraries of children with disabilities in narratives of women caregivers in the western area of Santiago, Chile]

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    Points of interest:

    • The authors discuss the limitations of laws on access to child rehabilitation in Chile.
    • Often, female caregivers bear more responsibility for children’s rehabilitation activities. This leads them to create alternative plans to ensure they can continue these processes.
    • The text uses the term “therapeutic pathways.” This term refers to plans developed by female caregivers to support their children or grandchildren with disabilities. These plans are created when medical and social support is insufficient.
    • Observations and interviews were conducted with 13 female caregivers in charge of children between the ages of 1 and 9.
    • The female caregivers describe the difficulties they face in obtaining a correct diagnosis and treatment for their children and grandchildren, due to problems with healthcare staff and the high cost of treatment. This causes them distress and exhaustion.
    • Some female caregivers receive support from therapists, foundations, and the educational community in the rehabilitation process for their children and grandchildren. In this way, they develop new therapeutic plans.
    • It is proposed to recognize that the work of women caregivers is important in rehabilitation, and to consider that rehabilitation includes both social and health aspects.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  8. La internación psiquiátrica involuntaria en el derecho chileno: aspectos sustantivos [Involuntary psychiatric hospitalization in Chilean law: substantive aspects]

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    Points of interest:

    • The social movement of People with Disabilities questions the practice of involuntary psychiatric hospitalizations.
    • Involuntary psychiatric hospitalizations refer to the hospitalization of a person without their consent. These hospitalizations are made to people with mental health conditions that put them at risk. They can also put others at risk.
    • The article mentions that the discussion of this type of hospitalization has to do with the fact that the freedom of the people who are hospitalized is not respected.
    • The author proposes solutions to make psychiatric hospitalization less restrictive and more focused on the autonomy of the person.

     

    Notes:

    • The following summary was prepared by the Millennium Nucleus DISCA and is based exclusively on the publication. Therefore, it cannot be used for citations or references.
    • This article was originally published in Spanish.

  9. Teatro y artivismo anticapacitista [Theater and anti-peacetic artivism]

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    Points of interest: 

    • The article presents the anticapacitic artivism in the experience of the group Compañía de Teatro Visión Imposible, composed of visually impaired people in Punta Arenas, Chile.
    • Artivism blends art and activism. The authors propose it as a form of resistance.
    • Artivism is understood as an expressive and political strategy and allows people to question the social order capacitist.
    • Capacitism measures the value of people based on an ideal body type. Capacitism leaves out all the bodies that are different, like people with disabilities.
    • Anti-capitalism values the differences in people’s minds and bodies. It is a form of fighting against capacitism.
    • The article shows a case study of the Theatre Company “Vision Impossible”. Focal groups and photo-ethnography were integrated. Creative preparations were also made to create a performance.
    • It is shown that there are strong relationships between the members of the Company. These relationships help them to recognize their identities as persons with disabilities. The members manage to recognize these identities through art.

    Notes:

    • The following summary was made by Núcleo Milenio DISCA, and was based exclusively on the publication. Therefore, it cannot be used for citations and references.
    • This article was originally published in Spanish.